Hello Warriors! As agreed, I would like to share with you some pictures and info about my NinaCar. It is such a cool invention! The vertical iron bar allows me to set up the device that pumps the milk through the nasogastric tube (the white pump that looks like a videogame alien) and also the [...]
Hello Warriors! Following ten hours of intense logistic arrangements, we managed to leave my super hometown Alcalá la Real and move towards the beach. Imagine everything you need to carry if you have a baby and add all the medicine and equipment related to GSD 1b (keeping the neupogen’s cold chain! Among other things) plus [...]
Hello Warriors! Today is a good day. We just got released from the Hospital. We will continue the control and treatment at home. Yeah! Finally! I also deserve some summer holidays. In fact, this is my first summer. I think I like it. People on holidays seem happier. The heat is not really good for [...]
Hello Warriors! Our team is growing! Today I would like to introduce my White Army: a group of Warriors that every fight so that all babies here in the hospital get better and leave as soon as possible. One day, one of them told me: “Nina, I really want you to leave and not to [...]
Hello Warriors! Today I would like to talk about a very special person: my uncle Adolfo. Strictly speaking he is not my uncle, he is my father’s cousin but since I am only 9 months old I do not make any distinction. Besides that, in my father’s heart he is like a brother to him [...]
In this blog I will be telling you about my adventures and the progress I am making. In the meantime, please take a look at the pictures in my first post!