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Nina, the Von Gierke’s warrior!

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Welcome to Nina’s web, the Von Gierke’s warrior!

Author: Superninac

Trilogy of a happy birthday – Episode I: the battle of “Los Alamos”

19 October, 2018 SuperninacLeave a comment

Hello Warriors! What a first happy birthday I have had! I have been celebrating for one full week. GSD puts us some limits but it will never stop us. We started the party on October 7th 2018, a date that will be written in history as the day in which Nina and her Warriors In [...]

Warriors In Action: Nina’s fans

1 October, 20181 October, 2018 SuperninacLeave a comment

Hello Warriors! As you know, my two countries – Spain and Italy – have a lot of things in common and one of them is soccer. Today I would like to talk to you about some special Warriors In Action: my Italian fans, my Tifosi Warriors. I am still not sure if GSD 1b will [...]

11 months, 2 teeth and 25.000 smiles

11 September, 201811 September, 2018 SuperninacLeave a comment

Hello Warriors! Today I become eleven months old and you have offered me 25.000 smiles... How great you are guys! Uish, I am so excited. Next month I become one year old. I am wondering if I will have a growth spurt! In the meantime, two teeth are coming out! Check the picture, you can hardly [...]

Warriors In Action: the generous birthday girl

6 September, 2018 SuperninacLeave a comment

Hello Warriors! August is over and maybe your holidays too. I hope you have had a very good time and that you could get some rest. I send you plenty of energy to go back to work, to school, to nursery school or wherever it is that you might be going back 🙂 I enjoyed the summer. [...]

Warriors In Action: “The meditators”

29 August, 201829 August, 2018 SuperninacLeave a comment

¡Hello Warriors! We continue the fight against GSD with more stories from our Warriors In Action, our WIA, in this occasion I would like to talk about "the meditators" mission. You know what? Those few days that I left the hospital and went to the seaside were some of the best in my life. It [...]

Warriors In Action: the hearts’ therapist (…and her accomplices)

23 August, 2018 SuperninacLeave a comment

Hello Warriors! Today I would like to continue talking about the W.I.A, the Warriors In Action. In this occasion, about the Italian W.I.A, the "Guerrier@ In Azione" I have the privilege of being a Warrior with two towns: my Andalusian town, Alcalá la Real, and my Venetian town, Portogruaro, where I was born. Do you want [...]

The University of Connecticut creates the Nina Contreras D’Agosto Fund

15 August, 2018 Superninac4 Comments

Hello Warriors! Once more, I have very good news I would like to share with you. Given the excellent results and the important amount of funds we have achieved during the last weeks plus the good prospects we have for the coming months, the University of Connecticut decided to upgrade our collaboration and to create [...]

Warriors In Action: little big human beings

11 August, 2018 SuperninacLeave a comment

Hello Warriors! Today I become ten months old! It is the fifth time that I celebrate in a hospital becoming one month older... but we have "high-level celebrations" here, we are in a seventh floor! 🙂 It is also my Spanish grandma Lola’s birthday. You have no idea how much I love her and she [...]

Thousands of lights… lighting up my tunnel!

7 August, 2018 SuperninacLeave a comment

Hello Warriors! Yesterday it was a month I published my website so it is a great moment to provide you an update about everything we have achieved together. You might remember what I said when I was describing the tunnel I am going through: there is light not only at the end of it but [...]

The light at the end of the long tunnel

4 August, 20185 August, 2018 SuperninacLeave a comment

Hello Warriors! I am sorry I did not update you for a while, I have been going through very hard times. I was really excited and ready to give you plenty of good news. I wanted to tell you all about my adventures in the seaside, how well I was sleeping and how I was [...]

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Recent posts

  • RESULTS: More than 111.000 € donated to research!! And so many other things… 6 October, 2022
  • Learning to eat when you live with GSD 25 August, 2021
  • My adventures to get the GSD1b empagliflozin off-label treatment with wonderful Dr Derks 21 September, 2020
  • One day in Nina’s life (before meeting Dr. Derks) :) 5 November, 2019
  • 52,495 USD raised in a year…. And increasing! 14 July, 2019

Recent comments

  • Erika on One day in Nina’s life (before meeting Dr. Derks) :)
  • بیوگرافی بازیگران on 52,495 USD raised in a year…. And increasing!
  • Superninac on 2018 review: Am I a lucky baby?
  • Christopher Lourenco on 2018 review: Am I a lucky baby?
  • Superninac on The University of Connecticut creates the Nina Contreras D’Agosto Fund

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Recent posts

  • RESULTS: More than 111.000 € donated to research!! And so many other things… 6 October, 2022
  • Learning to eat when you live with GSD 25 August, 2021
  • My adventures to get the GSD1b empagliflozin off-label treatment with wonderful Dr Derks 21 September, 2020
  • One day in Nina’s life (before meeting Dr. Derks) :) 5 November, 2019
  • 52,495 USD raised in a year…. And increasing! 14 July, 2019

Recent comments

  • Erika on One day in Nina’s life (before meeting Dr. Derks) :)
  • بیوگرافی بازیگران on 52,495 USD raised in a year…. And increasing!
  • Superninac on 2018 review: Am I a lucky baby?
  • Christopher Lourenco on 2018 review: Am I a lucky baby?
  • Superninac on The University of Connecticut creates the Nina Contreras D’Agosto Fund

Donations

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